People learned about this boy's tragedy and organized help. Take a look at this courageous boy and his inspirational story!

People learned about this boy's tragedy and organized help. Take a look at this courageous boy and his inspirational story!

Mahendra was born with a rare disease that affected his muscle fibre

Source: dailymail.co.uk

The world bids goodbye to 'the boy with the upside-down face' who had touched the hearts of millions.

In this AmoMama article we share the story of the incredibly brave boy from India who had earlier this year lost his life to an incurable disease.

Born with congenital myopathy, Mahendra Ahirwar's life had been a constant challenge.

The disorder, which primarily affects the skeletal muscle fiber causes extreme muscle weakness. The disease ultimately claimed Mahendra's young life at age 13.

READ MORE HERE: Doctors Said 500 Gram Baby Had No Chance. Three Months Later Tiny Girl Surprised Everyone

Mahendra's neck was not strong enough to keep his head upright

Source: dailymail.co.uk

Mahendra's touching story came to light with the release of a documentary, 'The Boy Who Sees Upside Down.'

Suffering from his rare condition, the muscle in Mahendra's neck had been too weak to hold his head upright, causing it to hang at a significant angle.

It was not until eight-months before his death that he had been granted the good fortune to undergo surgery to strengthen his neck.

READ MORE HERE: Wife Returned Home Early. Then She Went Into Husband's Room, And Saw That He Was Not Alone

After a life-changing surgery he was able to keep his head upright

Source: dailymail.co.uk

READ MORE HERE: Woman Took This Photo Just Before Giving Birth. Do You See Strange Things In This Picture?

"He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities."

Touched by his story, his surgery had been made possibly largely thanks to a mother from Liverpool, Julie Jones who had raised a substantial amount through charity.

Mahendra's surgery reinforced his neck

Source: dailymail.co.uk

Mahendra's ten-hour surgery was performed by Dr Rajagopalan Krishnan from the Apollo Hospital in Delhi.

During the procedure, doctors had replaced discs from his neck with bone graft from his pelvis before inserting a metal plate for reinforcement.

Mahendra's mother, 36-year-old Sumitra said that Dr Krishnan had given her boy new life; a new vision; an entirely different view of the world - literally and figuratively.

The heartbroken mother only wishes that he could have enjoyed his new life for longer than the shy eight months that he had been spared after the life-changing surgery.

READ MORE HERE: Mom Abandons Son At Hospital With A Little Note. When Doctors Read It, They Were Furious

Mahendra with his family

Source: dailymail.co.uk

Dr Krishnan explained that due the broad spectrum of the disease, it was hard to identify the specific class of myopathy that Mahendra had suffered from.

His death was, however, most likely caused by a cardiac related complication which is the most common cause of death among patients.

His mother said that he had been perfectly fine in the morning and had passed away without warning later in the afternoon.

Mahendra and Dr Krishna who performed the ten-hour surgery

Source: dailymail.co.uk

Mahendra is mourned by his mother and father, Mukesh Ahirwar and his brothers, Lalit and Surendra, and their sister Manisha.

Not only do his family and friends mourn his untimely passing, but so too do countless people the world over who had been touched by his bravery and courage.

Mahendra's family mourns his death

Source: dailymail.co.uk

To those who knew him, he will not be remembered as the boy with the upside down head, but rather as the boy who had the most magical, infectious smile.

Please share brave Mahendra's story, and join us in the comments. When last have you heard of such a courageous little fighter?

SOURCE: DAILY MAIL

Source: Kami.com.ph

Related news
“You got me there Ice, so much lessons learned." Nadine Lustre's dad breaks silence on son's death

“You got me there Ice, so much lessons learned." Nadine Lustre's dad breaks silence on son's death

“You got me there Ice, so much lessons learned." Nadine Lustre's dad breaks silence on son's death
KAMI.com.ph
Mailfire view pixel