The world bids goodbye to 'the boy with the upside-down face' who had touched the hearts of millions.
In this AmoMama article we share the story of the incredibly brave boy from India who had earlier this year lost his life to an incurable disease.
Born with congenital myopathy, Mahendra Ahirwar's life had been a constant challenge.
The disorder, which primarily affects the skeletal muscle fiber causes extreme muscle weakness. The disease ultimately claimed Mahendra's young life at age 13.
Mahendra's touching story came to light with the release of a documentary, 'The Boy Who Sees Upside Down.'
Suffering from his rare condition, the muscle in Mahendra's neck had been too weak to hold his head upright, causing it to hang at a significant angle.
It was not until eight-months before his death that he had been granted the good fortune to undergo surgery to strengthen his neck.
"He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities."
Touched by his story, his surgery had been made possibly largely thanks to a mother from Liverpool, Julie Jones who had raised a substantial amount through charity.
Mahendra's ten-hour surgery was performed by Dr Rajagopalan Krishnan from the Apollo Hospital in Delhi.
During the procedure, doctors had replaced discs from his neck with bone graft from his pelvis before inserting a metal plate for reinforcement.
Mahendra's mother, 36-year-old Sumitra said that Dr Krishnan had given her boy new life; a new vision; an entirely different view of the world - literally and figuratively.
The heartbroken mother only wishes that he could have enjoyed his new life for longer than the shy eight months that he had been spared after the life-changing surgery.
Dr Krishnan explained that due the broad spectrum of the disease, it was hard to identify the specific class of myopathy that Mahendra had suffered from.
His death was, however, most likely caused by a cardiac related complication which is the most common cause of death among patients.
His mother said that he had been perfectly fine in the morning and had passed away without warning later in the afternoon.
Mahendra is mourned by his mother and father, Mukesh Ahirwar and his brothers, Lalit and Surendra, and their sister Manisha.
Not only do his family and friends mourn his untimely passing, but so too do countless people the world over who had been touched by his bravery and courage.
To those who knew him, he will not be remembered as the boy with the upside down head, but rather as the boy who had the most magical, infectious smile.
Please share brave Mahendra's story, and join us in the comments. When last have you heard of such a courageous little fighter?
SOURCE: DAILY MAIL